Current Studies & Projects See what's going on with our studies and projects! Check out our latest research where we're making a real impact on understanding lifelong chronic conditions. Click below to explore and join us on our journey. Current Studies Assessing Autonomic Dysfunction in Individuals with Childhood Onset Chronic Conditions using a wearable device Read more Assessing Medical Gaslighting and Barriers to diagnosis of Ehlers-Danlos Syndrome Amongst Women Read more Hypermobile Ehlers-Danlos Syndrome (hEDS) Gene Study Multiomics Read more Hypermobile Ehlers-Danlos Syndrome (hEDS) Hormone Study Read more Hypermobile Ehlers-Danlos Syndrome (hEDS) Patient Symptom Management Guide Read more Natural History Registry of Hypermobile Ehlers Danlos Syndrome and Hypermobility Spectrum-Now Recruiting! Read more Registry and Biorepository for the Hypermobile Ehlers-Danlos Syndrome Population Read more Population-Based Surveillance Arizona Developmental Disabilities Surveillance Program (ADDSP) Read more Congenital Heart Defects Surveillance across Time and Regions (CHD STAR) Read more Tracking the burden, distribution, and impact of Post COVID-19 conditions in diverse populations for children, adolescents, and adults (TrackPCC) Read more Community-Based Projects Arizona Health Care Transition Performance Improvement Program Read more Congenital Hearts of Arizona (CHAZ) Read more Physical Therapist and General Practitioner Diagnostic Partner Program Read more
Assessing Autonomic Dysfunction in Individuals with Childhood Onset Chronic Conditions using a wearable device Read more
Assessing Medical Gaslighting and Barriers to diagnosis of Ehlers-Danlos Syndrome Amongst Women Read more
Natural History Registry of Hypermobile Ehlers Danlos Syndrome and Hypermobility Spectrum-Now Recruiting! Read more
Tracking the burden, distribution, and impact of Post COVID-19 conditions in diverse populations for children, adolescents, and adults (TrackPCC) Read more