NEWS Check Out Our Latest News & Updates Image Changes in Provision of Recommended Cardiac Care for Duchenne Muscular Dystrophy Using a Longitudinal Cohort May 19, 2026 This study reports increases in timing and frequency of cardiac care following publication of the 2010 Care Considerations using data from MD STARnet. Read more Image Distressing Bleeding Symptoms in Interviews of Patients With Hypermobile Ehlers–Danlos Syndrome and Hypermobility Spectrum Disorder Dec. 1, 2025 Our study found common bleeding symptoms in EDS patients, like gum bleeding and heavy menstruation, often caused distress but was undertreated in clinical care Read full text
Image Changes in Provision of Recommended Cardiac Care for Duchenne Muscular Dystrophy Using a Longitudinal Cohort May 19, 2026 This study reports increases in timing and frequency of cardiac care following publication of the 2010 Care Considerations using data from MD STARnet. Read more
Image Distressing Bleeding Symptoms in Interviews of Patients With Hypermobile Ehlers–Danlos Syndrome and Hypermobility Spectrum Disorder Dec. 1, 2025 Our study found common bleeding symptoms in EDS patients, like gum bleeding and heavy menstruation, often caused distress but was undertreated in clinical care Read full text
