Congenital Heart Defects Surveillance across Time and Regions (CHD STAR)

Project Description

The Arizona Congenital Heart Defect Surveillance and Tracking Across Regions (AZ CHD STAR) is a population-based surveillance project that will examine the following over time: descriptive epidemiology, survival, health outcomes, healthcare use, and racial/ethnic differences in children, adolescents, and adults living with a congenital heart defect.

Objectives

1. Generate a population-based surveillance cohort of at least 2000 Individuals with an eligible CHD aged 0y - 45y of which at least 300 are aged 18y or younger and 300 are aged 35y - 45y that includes health and non-health information from 2010-2019.

2. In collaboration with the members of the surveillance network, outline, draft, and disseminate a report on descriptive epidemiology of individuals aged 0-45 years with CHD.

3. In collaboration with the surveillance network, outline, draft, and disseminate a report on health and non-health outcomes of individuals aged 0-45 years with CHD.

Resources

We will provide resources on our website once they are available

Project Coordinator

Funder

We will provide a link for publications on our website once they are available by project

Inclusion Criteria:

TBD

Exclusion Criteria:

TBD

Partner Sites:

University of Arizona

Duke University

Emory University

University of Iowa

University of Utah

New York State Department of Health

South Carolina Department of Health and Environmental Control

We will provide a link for data on our website once the data are available by project

Local Data

No access currently.

National Data

No access currently.

We will provide a link for data requests on our website once the data are available by project