Congenital Heart Defects Surveillance across Time and Regions (CHD STAR)
Project Description
The Arizona Congenital Heart Defect Surveillance and Tracking Across Regions (AZ CHD STAR) is a population-based surveillance project that will examine the following over time: descriptive epidemiology, survival, health outcomes, healthcare use, and racial/ethnic differences in children, adolescents, and adults living with a congenital heart defect.
Objectives
1. Generate a population-based surveillance cohort of at least 2000 Individuals with an eligible CHD aged 0y - 45y of which at least 300 are aged 18y or younger and 300 are aged 35y - 45y that includes health and non-health information from 2010-2019.
2. In collaboration with the members of the surveillance network, outline, draft, and disseminate a report on descriptive epidemiology of individuals aged 0-45 years with CHD.
3. In collaboration with the surveillance network, outline, draft, and disseminate a report on health and non-health outcomes of individuals aged 0-45 years with CHD.
