Spina Bifida Surveillance across Time And Regions (SBSTAR)

Project Description

Spina Bifida (SB) is a common birth defect that happens when the spine doesn't develop correctly while a baby is growing in the womb. The health effects of SB can vary a lot depending on where the spine is affected. People with SB may need help with things like moving, bladder control, and learning delays throughout their lives. However, we don't know much about how SB affects health in the long term because most research is focused on children. ARID lab is working with the CDC on a project to collect health information from SB patients of all ages across the country to improve their health and quality of life. 

Project Coordinator