Answers for a Lifetime of Care
Together we can make discoveries that change how rare and lifelong disease is understood.
Arizona Research for Impact and Discovery (ARID) Lab
The ARID Lab is a research unit in the Division of Pediatric Cardiology at the University of Arizona. Our team brings together varied disciplinary backgrounds, united by a commitment to asking the right questions and staying connected to the communities we serve — turning patient-reported experience and clinical data into insight that improves everyday care.
Generating data-driven answers for people living with lifelong, rare, and complex health conditions.
Congenital Heart Disease
Congenital heart defects (CHD) are the most common of all birth defects. Through improvements in care, 90% of pediatric CHD patients are expected to reach adulthood. Our clinician-scientists and research faculty conduct a wide array of clinical research aimed at improving the lives of those born with CHD or who have developed a heart problem during childhood.
Symptomatic Hypermobility
We study the everyday reality of living with hypermobile Ehlers-Danlos syndrome and hypermobility spectrum disorder. Our work centers patient voice alongside clinical data, aiming to close the gap between what patients experience and what gets measured. We are part of the Illinois Hypermobility Network EDS Core Network of Excellence.
Arizona Population Surveillance
Our population health surveillance systems track how symptoms, care, and outcomes evolve across the lifespan. These efforts improve the health and quality of life by providing population-based data that represents the demographics of the entire population, assess patterns in care received and outcomes for individuals living with lifelong conditions across their lifespan. These data are used to guide changes in health care policy and care guidelines.
Cross-Condition Research
Not every important question belongs to a single diagnosis. We run one-off studies that look across multiple conditions at once, following patterns of symptoms, care, or outcomes that a single-disease study would miss entirely. This work often surfaces the questions that go on to become full research lines of their own.
Health Care Transition
Beyond EDS and CHD, have numerous other surveillance and research projects. Our surveillance systems track how symptoms, care, and outcomes evolve across the lifespan. The retrospective and prospective studies we conduct in other rare and lifelong conditions or spanning multiple conditions guide us to catch patterns early and build the evidence base for conditions that are often understudied on their own.
