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Symptomatic Hypermobility

The symptoms are real, even when everything comes back normal. 

Current Projects

Natural History Registry

This registry for people with hypermobile Ehlers-Danlos syndrome (hEDS) or Hypermobile Spectrum Disorder (HSD) collects information on symptoms, quality of life, and diagnostic experiences. The data will help researchers better understand how these conditions develop over time, vary across populations, and impact daily life.

Illinois Hypermobility Network  

EDS CORE Network of Excellence

Past Products

Manuscript | Registry

Jesudas, R., Chaudhury, A., & Laukaitis, C. M. (2019). An update on the new classification of Ehlers‐Danlos syndrome and review of the causes of bleeding in this population. Haemophilia, 25(4), 558-566.

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Manuscript

Patel, T. D., McNicholas, M. N., & Laukaitis, C. M. (2023). A Heterozygous Variant of TGFB3 in a Patient With an Atypical Presentation of Loeys–Dietz Syndrome: A Case Report. Annals of Internal Medicine: Clinical Cases, 2(11), e230035.

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Resource | Educational

This PDF is a collection of handouts explaining critical concepts and treatments.

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Videos

How to conduct a Beighton Score
Assessing Risk and Completing the Diagnostic Assessment for hEDS and Related HSD