hEDS Patient Symptom Management Guide
Project Description
The goal of this project is to help create a resource for participants with EDS based upon self reported management techniques to help improve quality of life for individuals with this condition.
This project is part of MARC-EDS.
Visit their website to find out more about the EDS projects.
Eligibility
This project IS NOT Actively Recruiting
Individuals who are eligible to participate:
Males and Females
Ages 14 and up
Diagnosis of EDS or a hypermobile disorder
Project Coordinator
Funder
Resources